Wednesday, April 17, 2019

Update 2019

Just wanted to post an update about where we are at. Elliot hasn't had a treatment since September which is fine since we're in the maintenance phase currently. Our Blue Cross insurance is still denying coverage so we're reapplying for Children's Special Health Care Services to help us. Without insurance the cost of laser surgery is just too far out of reach. I spoke to his specialist today and she said his last surgery was billed at just over $14,000. >.<

He's doing really well and I'm happy with where we're at. There is a new laser on the market called the Prima which is able to target deeper than those currently available. Unfortunately the University of Michigan doesn't have plans to add one at this time. I'm hoping they'll jump on board soon because I'd love to see if we could get more clearance with the new laser.

Homeschooling is going really well and I'm so impressed with Elliot's math ability. He's currently working a grade level ahead, which is the biggest perk of homeschooling! I love being able to meet the kids where they're at academically. We're on spring break this week and we're enjoying the outdoors and relaxation.

He needs a recheck with the ophthalmologist soon so I need to get that scheduled. That's about it!


We colored Easter eggs today! This isn't a great quality photo but good enough to see the PWS. :)

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