Showing posts with label laser surgery. Show all posts
Showing posts with label laser surgery. Show all posts

Tuesday, October 26, 2021

Elliot’s Treatment #22













 Whew! What a whirlwind of a year and a half since I last posted here!


Elliot was scheduled for this procedure in September but we canceled because we have been in a worldwide pandemic since March 2020. Covid 19 has swept the planet causing an unfathomable amount of death and destruction. 

Since anesthesia weakens your immune system we opted to wait until now to go back for a treatment. His treatment was October 20th, 2021.

Elliot did great through the whole thing. The nurses are always amazed at how easy going his is, both pre and post op. We had an early check in (7:15am) and didn’t see many others there this time.

Today is 6 days post op and he’s healing really well. This time he didn’t get any large scabs which I’m thankful for. He hasn’t complained at all about it being uncomfortable aside from the swelling the morning after. 

Since I have haven’t updated in a while, he has had an ophthalmologist appointment recently also and that went very well! He’s now on a yearly check up schedule. Yay!!!




Saturday, February 22, 2020

Treatment #21: 1-3 Days Post Op

Laser treatment #21 of Elliot's Port Wine Stain is in the books. Elliot was a champ through it all, as usual. Our plan was to try the new Prima laser this time, but unfortunately it wouldn't calibrate correctly so Dr. Orringer was unable to use it. The Prima is the first laser improvement since Elliot was born. It's supposed to target the Port Wine Stain deeper and I've heard that healing time is a little shorter. I was pretty bummed that it wasn't working that day. I'm actually scheduling him for another treatment in April to give it a go.

He said it was pretty painful when he woke up. The nurse asked his pain level and he said a "7" (which I'm going to say was inaccurate) but they gave him a dose of fentanyl. I nearly died, haha. I didn't even know they use that for pain management in children! Yikes.

Today is 3 days post op and he hasn't complained at all about the pain. He said it doesn't really bother him. The swelling is still there today but they did a REALLY heavy treatment.



Mommy and Elliot before he went back
Aunt Lisha is our rock on treatment days


Elliot always wants Chipotle after <3
In the recovery room
PWS LASER SURGERY
Day 1 Post Op. Lots of swelling. 
Day 2 Post Op

You can see in the photos how much darker the spots got over the first couple of days. It was a really heavy treatment. I wish I had asked what joules it was at. I'm praying he doesn't get bad scabbing. 

His swelling is better today but he still doesn't have much of a waterline. Also, just check out that "man bun" 😍😍😍 #HairGoals



Day 3 Post op. Spots are darker, swelling is going down
Side view


I'll update again in a couple of days with more healing photos. As always, if you have any questions about Port Wine Stains or laser surgery feel free to ask.

xoxo


Monday, September 24, 2018

Homeschool Journey

In January of this year (2018) we made the decision to pull our kids out of public school. Homeschooling was a dream of mine when I was a new mom, but quickly lost that drive when I had my hands full.   


It’s crazy how life happens sometimes. We always have a picture in our head of how things are supposed to be, but they rarely turn out that way exactly. Oftentimes we fight against reality to try to shape our lives into that image in our head. Sometimes we just go with the flow. I’ve learned through the years that it’s usually easier to just go with the flow and adapt, but it isn’t always easy. Twelve years ago my first child, Emma,  was born. I had grandiose ideas of how it would look to be her mother. I pictured myself as the apron-wearing mom that was shuffling between girl scouts and soccer while looking like I slept for 8 hours the night before. Ha! While we certainly had snippets of times like this, reality was nothing as I had pictured. Instead I was chasing a hyperactive two year old through stores, throwing my hair into messy ponytails and crossing my fingers that the clothes I pulled out of my closet matched as I raced to pull her off of the fridge….again. 

When she was a baby I dreamed of homeschooling. When she was four I physically carried her to the bus and handed her over with a deep sigh of relief. I couldn’t wait for four hours of silence! Fast forward to last year. We had three kids and life was going smoothly. Our kids were older and life was starting to slow down. There was less chasing and more relaxing. I began to toss around the idea of homeschooling again. Then summer vacation came and the kids were rambunctious and by the time August arrived I was happily driving them to school at 7:30 am. “I could never homeschool. I’d lose my sanity. I’d fail them miserably and the world would fall apart.” Those were a few of the fears that popped into my head every time the idea of homeschooling came up. 

Then, in January, a life changing event happened. My nephew had a seizure, and many subsequent seizures, at school and he was rushed to the ER by ambulance. Our local hospital transferred him to a pediatric ICU unit an hour away where he spent the next 5 days of his life. Our world stopped spinning. Everything that was happening came to an abrupt halt as we sat in the hospital praying and hoping he’d open his eyes again. The day this happened I had my grandma pick up my children from school, and I never sent them back. It was while I was sitting there in that hospital, watching my nephew fight for his life, that it hit me how quickly the world can change. Everything we’ve planned and everything we strive for can hang in the balance. Miracles happen. Five days later he was on his way home, smiling but with a long road ahead of him. 

While fear may have been the driving factor that day, it’s been nine months since we began
homeschooling and it is going so much better than I every dreamed of. My sanity is still in tact and my kids are thriving in their new environment. Would it have worked as well a year ago? I’ll never know but I don’t think so. I think the choice was made at the right time for us for a reason.



One of my fears when Elliot was little was sending him to public school. What would kids say? How would they treat him? I know I've talked about this in previous blog posts, but I had a crazy fear of sending him off into a shark tank. However, Elliot adjusted so well and so quickly. He often had people ask "what happened" to his face, and he would usually say "those are my spots" even when he didn't have his "spots" from his treatment. He has fielded all of these questions like a champ. He's always exuded confidence because I raised him to. Even when my own confidence was lacking I'd pretend to be the most confident person in the world in front of him. 

When we made that decision, I started to feel that fear again. Yet this time it was in the opposite direction. Will this affect his confidence in the future? Will he still be able to feel "normal" as he grows without a class full of peers that already know he has a birthmark? A couple weeks ago Elliot and his brother Ethan started Ninja Gymnastics class. He said to be after: "Mom, someone asked what was on my chin. So I wiped my chin but nothing was there. Then he said 'no, i mean your cheek' and I said oh, that's my birthmark. Then he said 'Were you born with it?' and I told him yes." And it was that simple. A normal conversation between two normal boys and he handled it like he always has. 



xoxo

Thursday, September 20, 2018

Treatment 20, Post-op Day 1

Elliot slept like a rock last night. He's usually awake mid-way through my shift (I teach ESL online) and today he slept through all of my classes until 10am! He woke up extremely swollen, which we were prepared for. He's currently holding a bag of frozen corn on his eye to open it a little more. This is another solid treatment by Dr. Orringer, and I'm pleased to see that he went heavy on his lower cheek. That's always been the most stubborn area. Oh, and we're still rocking that pony spout. ;)



Wednesday, September 19, 2018

Laser Treatment #20!

TWENTY!!!!!!

That's the number of treatments Elliot has had since he was born. I remember talking to other moms going through this and when they'd tell me a high number I'd gasp! "Woah, we'll never need that many!" I'd tell myself.

It's amazing to look back over the years and see the progress, the regression, and more progress. A port wine stain is always a work in progress when treating since the body is a self-healing machine and PWS is vascular. Summertime is a PWS's worse enemy, and without fail we miss many days of sunblock. This year we put a pool in so we tried extra hard to remember that sunblock.

Ten days ago Elliot started counting down the days to his treatment like it was Christmas morning. This was a first. He's always great about it, but it's usually a "ugh, here we go" type of attitude. This time was different. Last night he got his stuffy ready to take, made sure he had clothes and that I packed the things he needed. He woke up excited to get on the road to head to Ann Arbor. My heart was happy.

We were checked in and he was in the OR within 30 minutes. We were released and heading home after spending 90 minutes in the hospital. We basically get drive thru service these days. ;) Since we're now on once yearly maintenance treatments we opted for a full-power treatment as opposed to blending. The downside is more recovery time, the upside is less treatments. I can always tell when our progress is regressing because his little horseshoe mark above his brow makes its appearance. Elliot spent the few minutes we were in the recovery room gushing about how kind everyone was there. It's always a top-notch experience and I'm so thankful to have this hospital and their staff so close to home.


xoxo



Checking in to Pre-op
Ready to head back!

Spots complete :)



His hair was making his spots itch, so we problem solved. ;) hahaha