Tuesday, January 19, 2016

Laser Surgery Tomorrow!

Elliot is scheduled for his treatment tomorrow at Mott's Children's hospital. Fingers crossed that nothing comes up between now and then! Today we are gathering his school work for the next two weeks since he will be missing school for recovery. Stay tuned for pictures tomorrow!

Saturday, December 19, 2015

Treatment #17 postponed

Elliot was scheduled for laser surgery on Wednesday, however he was sick. Our appointment was canceled and he's now scheduled for January 20th. He was actually quite bummed....he really looks forward to that Chipotle, and the fact that he was going to get a longer Christmas break, haha. 

I hope everyone has a very merry Christmas and a happy new year! We really do appreciate all of the support from our readers!

Monday, November 30, 2015

Looking for makeup?

Hi everyone!
Whew...it's been busy around the Thorp household! I didn't realize I haven't posted since September...the time is flying by!

I had to share this real quick with all of Elliot's followers. Makeup is not something we've considered, or are considering yet, though it may be in the future. A month ago I signed up as a Younique presenter because I personally love the the makeup.

One of our best sellers this month is the Liquid Mineral Touch foundation. I personally use this and love it but after seeing numerous posts about "watch it cover ____" I decided I wanted to see how well it covered a Port Wine Stain. Most makeup for PWS is very pricey so I was hoping we were embarking on a cheap option!

Well lo and behold...it disappeared before my eyes. Elliot was a trooper and let me test my foundation out on him (for $$ of course haha). I used 3 drops of my Velour Mineral Touch liquid and my jaw dropped.

I just wanted to share because if you're someone who has a PWS and are interested in a foundation to cover it...I wanted you to know there is an affordable option. Feel free to message me if you're interested in a color matching!

Elliot goes in on Dec. 16th for his next treatment, and I'm going to "guinea pig" him again to see how it covers the laser spots. Stay tuned!

If you're interested in the foundation visit www.JenasBeautyBoutique.com



xoxo,
Jena

Thursday, September 24, 2015

Elliot's in Kindergarten!! Say What?!?

I cannot even fathom how the years have flown as fast as they have. One minute I was nursing my beautiful baby boy and the next I was walking him to his class on the first day of kindergarten! It is so cliche to say but they REALLY DO grow up so fast!!

Elliot is really enjoying kindergarten. The first couple of days he shed some tears, as I expected. But now he jumps out of my car every morning like champ. His best friend Aislee is in his class and I think this has really helped him to adjust.

One of my biggest fears of sending him to school was how others would react to his port wine stain. In preschool it wasn't AS scary because he was only around kids his age. However, since our kids attend a charter school he is surrounded by all ages of students. I asked him after his first week of school if anyone had asked what his birthmark was, and he said "just Emma's friend Teagan on the bus" and that was it. He is lucky to have his own little group of supporters at school. Not only does he have his siblings, but also my best friends (Alisha) 3 kids and all of our neighbors.

Elliot will be having another full strength treatment in December. We had considered stopping at the doctors request, however after a summer full of LOTS of outdoor time and not enough sunblock it seems that the mark is beginning to darken again. When we lived at the apartments I was diligent in applying sunscreen almost every single time we walked out the door. That's because going outside was a process that involved me ALWAYS. Now that we have our own house and yard the kids are in and out constantly from the moment the sun rises. This has caused frequent sun exposure without proper sunscreen way too often. I have decided to put a small shelf by the front door to hold the sunscreen products and hats...with a sign to help Elliot remember that we HAVE to put it on before walking out.

That's all of the update I have for now. I really appreciate all of the followers that his blog has gained since it started, and I truly hope that our journey has helped even one person who was given this path in life.

xoxo
Jena

Tuesday, July 28, 2015

Elliot's eye appointment 7/28

Elliot had his 6 month eye appointment today with Dr. Luparello. He was in quite the silly mood today and was being VERY hyper. But for the first time in probably 1 1/2 years he actually sat still and let them check his pressure! His pressure today was 18 which is in the normal range. She said everything looks great! I'm so thankful that his eye has not been affected. :) We will go back in January for his next check up.

We're thinking about doing another treatment in December on winter break. This summer has been rough for keeping sunblock on 24/7. I feel that his PWS has darkened back up slightly, so we will get another treatment to help lighten the effects from this summer.

Here are some cute pic's from his appointment!





Saturday, July 18, 2015

Summer fun!

We're having a fun summer in the Thorp house! Elliots port wine stain had seemed to darken a little because we haven't been as diligent about sunblock. :( We will most likely get another treatment this year once summer has ended.

I hope you're all having a great summer!


Monday, June 15, 2015

Summer break and a video!

Elliot graduated preschool! Ahhhh! Where has the time gone? Seems like just a short time ago that he was a newborn. He's learning his letters, numbers and sounds and doing great. I'm very proud of him!